SICKLE CELL DISEASE IN CHILDREN AND ADOLESCENTS: DIAGNOSIS, GUIDELINES FOR COMPREHENSIVE CARE, AND CARE PATHS AND PROTOCOLS FOR MANAGEMENT OF ACUTE AND CHRONIC COMPLICATIONS

Much progress has been made during the past 20 years in the treatment of sickle cell disease. Identification of most affected …

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SICKLE CELL DISEASE IN CHILDREN AND ADOLESCENTS: DIAGNOSIS, GUIDELINES FOR COMPREHENSIVE CARE, AND CARE PATHS AND PROTOCOLS FOR MANAGEMENT OF ACUTE AND CHRONIC COMPLICATIONS

  • INTRODUCTION
  • PRINCIPLES OF CARE FOR CHILDREN AND ADOLESCENTS WITH SICKLE CELL DISEASE
  • DIAGNOSTIC TESTING FOR THE COMMON SICKLE CELL SYNDROMES
  • NEWBORN SCREENING FOLLOW-UP GUIDELINES
  • Follow-up of Infants with Probable Hemoglobin Disease
  • Follow-up of Infants with Probable Hemoglobin Trait
  • Follow-up Procedures for Infants with Hemoglobin Bart\’s
  • Unidentified Hemoglobin Variants
  • Genetic Counseling
  • SICKLE CELL DISEASE – COMPREHENSIVE CARE
  • Routine comprehensive evaluations
  • Immunizations and prophylactic medications
  • Sickle cell patient & family needs assessment
  • ACUTE ILLNESS IN SICKLE CELL DISEASE: Illness Requiring Urgent Medical Care
  • TRANSFUSION THERAPY FOR ACUTE COMPLICATIONS
  • CLINICAL CARE PATHS
  • OUTPATIENT EVALUATION AND MANAGEMENT OF FEBRILE ILLNESS
  • INPATIENT MANAGEMENT OF FEVER
  • OUTPATIENT EVALUATION AND MANAGEMENT OF PAIN
  • INPATIENT MANAGEMENT OF VASO-OCCLUSIVE PAIN
  • ACUTE CHEST SYNDROME
  • ACUTE SPLENIC SEQUESTRATION
  • APLASTIC CRISIS
  • ACUTE STROKE OR NEUROLOGIC EVENT
  • OUTPATIENT MANAGEMENT OF PROLONGED PRIAPISM
  • INPATIENT MANAGEMENT OF PROLONGED PRIAPISM
  • GENERAL ANESTHESIA AND SURGERY
  • CHRONIC TRANSFUSION PROTOCOL
  • HYDROXYUREA PROTOCOL
  • HEMATOPOIETIC STEM CELL TRANSPLANTATION
  • TRANSCRANIAL DOPPLER ULTRASONOGRAPHY
  • REFERENCES
  • APPENDIX
  • Sickle cell disease care consortium
  • Other Contributors

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